Posted by: Susan | August 4, 2011

FYI…All about down syndrome


Just a few things that are helpful or interesting.  Hope you are managing to stay cool:)

If you are going to the National Down Syndrome Congress Convention this weekend don’t miss hearing and meeting our daughter Jennifer speak.  Details here Let’s Talk Down syndrome.

Our daughter Jennifer with husband Pete!

Not long after April was born I found and copied off a set of medical guidelines for babies with down syndrome and gave them to our family pediatrician.  That was long before they could be found easily on-line.  The most current edition is out and I would suggest that  you copy them and give them to your family doctor.  They cover ages birth through adulthood. Health Supervision Guidelines

And finally what do you do when GQ puts a derogatory comment about DS in it’s magazine?  You write a letter to the editor like Dr. Brian Skotko did: Mock my pants not my sister.

Jake, 600 pictures on the iPod touch and counting!

Have a great Thursday………………..

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